My brain stroke blog » Czerwiec 29, 2020

Daily Archives: Czerwiec 29, 2020

in my opinion my stroke rehabilitation stroke survivors strokes Uncategorized

About having things done for/helping stroke survivors

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When disability after stroke (and every other kind to tell the truth) comes into being it is new for everyone. For a person affected, for his/her caregivers. For friends. It also brings an important question:

should we help a person with a disability with everything?

The answer is super easy: NO. If the stroke survivor has contact with the world and has any possibilities to move (even in a limited range): DON’T DO THAT. 

If you want to help a stroke survivor to recover, don’t.

I admit. Sadly, this issue is not easy for both sides. To some extend it is easy to serve, feed, put in a fix, open the bottle, move in a wheelchair, yes. But on the other hand, such help doesn’t give any possibility to the sick person to mobilize to the painful process of recovery. 

Look at hospitals – the hospital bed tables are usually placed on the affected side of the body of a Strokie. It is about encouraging the patient to do things himself… To tell the truth, I’m not sure whether it works that well. In a first hospital, I was placed after stroke, I tried to use my right hand anyway (my right side was affected). Always. I even got a bit cunning. For a few weeks I was laying next to the window, so I used a windowsill as my additional table and storage area. In some hospitals (later on), nurses would scold me for that, but in the first one, I don’t think so (i don’t remember for sure, though). Continue reading

in my opinion stroke survivors what have I learned after stroke

The pain and the pain are not the same

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You do not have to look into the calendar to feel that spring has come! generally, it is wonderful, but also it means a few things:

  • more sun,
  • more walks,
  • less sleeping in the morning,
  • chilling in my hammock.

Great, but there is another ‚but’. For me it also means:

  • joint pain,
  • face-ache (my whole face hurts),
  • itchiness after every small  exposure to the sun,
  • nettle rash.

Yeah, it all comes with my lupus. I have to tell you though, that in my case my pain is survivable. It just exists.

To tell the truth, many things hurt. Leg, join, ovary, throat etc., – but for me it’s ok. It just exists.

For me the biggest disaster is HEADACHES.

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