Category Archives: stroke survivors

in my opinion my stroke rehabilitation stroke survivors strokes Uncategorized

About having things done for/helping stroke survivors

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When disability after stroke (and every other kind to tell the truth) comes into being it is new for everyone. For a person affected, for his/her caregivers. For friends. It also brings an important question:

should we help a person with a disability with everything?

The answer is super easy: NO. If the stroke survivor has contact with the world and has any possibilities to move (even in a limited range): DON’T DO THAT. 

If you want to help a stroke survivor to recover, don’t.

I admit. Sadly, this issue is not easy for both sides. To some extend it is easy to serve, feed, put in a fix, open the bottle, move in a wheelchair, yes. But on the other hand, such help doesn’t give any possibility to the sick person to mobilize to the painful process of recovery. 

Look at hospitals – the hospital bed tables are usually placed on the affected side of the body of a Strokie. It is about encouraging the patient to do things himself… To tell the truth, I’m not sure whether it works that well. In a first hospital, I was placed after stroke, I tried to use my right hand anyway (my right side was affected). Always. I even got a bit cunning. For a few weeks I was laying next to the window, so I used a windowsill as my additional table and storage area. In some hospitals (later on), nurses would scold me for that, but in the first one, I don’t think so (i don’t remember for sure, though). Continue reading

in my opinion stroke survivors what have I learned after stroke

The pain and the pain are not the same

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You do not have to look into the calendar to feel that spring has come! generally, it is wonderful, but also it means a few things:

  • more sun,
  • more walks,
  • less sleeping in the morning,
  • chilling in my hammock.

Great, but there is another ‚but’. For me it also means:

  • joint pain,
  • face-ache (my whole face hurts),
  • itchiness after every small  exposure to the sun,
  • nettle rash.

Yeah, it all comes with my lupus. I have to tell you though, that in my case my pain is survivable. It just exists.

To tell the truth, many things hurt. Leg, join, ovary, throat etc., – but for me it’s ok. It just exists.

For me the biggest disaster is HEADACHES.

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in my opinion loosing weight my stroke rehabilitation stroke survivors strokes

Secondary prevention after stroke

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regardless of whether you are a stroke survivor, a caretaker or just a good friend, the “never again!” thought will cross your mind sooner or later. This thought will transmute into fear once you are told that chances of a second stroke are pretty high. You can reject and deny it, you can agonize about it, but the most reasonable thing to do is try hard not to fall ill again.  A haunting vision of a second stroke (and every successive stroke) gives most of us sleepless nights.

Frankly, can we be sure that it will never happen again? Can we minimize the risk of a second stroke? Absolutely. Preventing the disease from recurring is called secondary prevention.   

kasia lewaczka.pl in the truck full of carrotsIt’s much better worded at the portal: PZH

Secondary prevention (2nd phase) is about early diagnosis and prompt intervention in order to arrest the disease process – and thus, about identifying risk factors and their elimination. It is addressed to persons at risk and encompasses, among others, screening tests like screening for breast cancer (mammography) or cervical cancer (cytology), periodic check-ups, control of risk factors, counselling.

It is commonly divided into secondary and long-term prevention – and the latter has to become a regular part of our lives. However, this doesn’t mean that every single day of your life your mind will go “oh gosh prevention prevention”. I believe, we can’t go on like that:) What I mean is rather the need to integrate new habits into our lives.

In the case of stroke survivors, the secondary prevention process starts (at least, should start …) in hospital. From the very beginning we, along with our closest family, are instructed what to do, what not to do, what to eat, what to avoid. Is it helpful? Sometimes yes, sometimes not too much, it depends on the medical staff. In some cases, doctors find the time and attention to give us some useful advice, sometimes not. How do I know that, me being the lucky one that, in most cases, received sound advice? I know it from your emails, and believe me, over these last 5 years (yes, this May it’s exactly five years since my first post on Lewaczka.pl!) I have mailed and talked to many people who felt like they were wandering in the fog, surrounded by darkness, after they had left the hospital.

The hospital discharge form contains a line which says: medical recommendations and patient care recommendations. I can’t recall anymore whether they come in the same line, but this is where the attending doctor puts what should be done next, e.g. consult a specialist in XXX, further diagnostics  …Generally, what needs to be checked and treated. Patient care recommendations, on the other hand, can be detailed or limited to just three words, e.g. “Mediterranean diet recommended”.

Ok, ok, let’s get to the point. There are a few basic rules to follow to help you regain health, strength and prevent strokes from recurring. And so

How to prevent a stroke from recurring – basic rules:

  1. Quit smoking. Sorry, chain smokers, and you, social smokers! Cigarettes are the biggest (along with age) risk factor for stroke. So start here. Quit. I did:) And I believe you too will manage to quit. Fingers crossed!
  2. Take your meds regularly – unfortunately, most probably, we will take some of them (e.g. anti-platelet drugs) until our very last breath. Sad, but true.
  3. Diagnostics and treatment of other diseases – knowledge about diabetes, hypertension, blood coagulation diseases, arrhythmia, aneurysms etc. – gives you a chance to treat them in time or limit their effects, including – surprise! – the chance of another stroke:)
  4. Regular medical checkups. We all understand their importance.
  5. Weight loss – insert a sad face here; I have been fighting this battle for years and at the moment I’m the fattest I’ve ever been. Nothing to boast about, and a lot to worry about.
  6. Move more – physiotherapy won’t do it all. You need to move more at home, outdoors, just about anywhere. Of course, this is super difficult for bedridden patients, but those of you who use a wheelchair or are able to walk, can move more. Although I’m doing pretty well, sometimes I sink into depression and I can’t drag myself out of bed. Fortunately, I found a solution. I got myself a dog! So now, I have to go on walks a few times a day, even when my body is heavy like a sack of flour and every step feels like a Mount Everest climb. And now guess: who walks whom?
  7. A healthy, well-balanced diet – yes, diet is very important. I mentioned above the Mediterranean diet, but generally it’s about eating healthy – fulfilling one’s nutritional needs in a balanced way, including foods that reduce the risk of stroke. Take vitamins! Vitamin deficiencies are one of the stroke risk factors.
  8. Of course, those of you who are able to exercise, would benefit from 3-4 cardio sessions a week, but now I can see some of your faces saying “yeah, sure”. It’s good to do that routine, but sure – after TIA your workout is limited to dangling a cane – so what you can do then is just a walk, some stretching or swimming. Let’s stay reasonable.
  9. Stop or cut down on alcohol consumption. Sorry!. After my first stroke, my attending said to me, roughly: „Miss Kasia, stick rather to a wine of glass with your lunch and not a bottle of vodka at a party, ok?” I’m fine with that:) These days I don’t drink at all because of the antiepileptic meds. From a party girl (university days) I turned into a teetotaler. And I’m fine!:)
  10. Less stress – yes, really. Again it’s something that’s easy to say, difficult to incorporate in our lives. By the way, there is no hard proof that stress leads to strokes, but… ongoing, constant stress undoubtedly exhausts human body, and according to some doctors, increases the risk of stroke.
  11. Drink water – plenty of it – it’s incredibly important for our bodies. If I remember right, research shows that 60% of patients admitted to stroke wards is dehydrated. And in such case, blood becomes thicker. You well know what it means for patients who were hospitalized because of a thrombus (blood clots). No need to convince you any further how important it is to stay hydrated, right?
  12. Change your lifestyle – I find this point hilarious, as this one is usually a summary of all the previous tips. Cause a change of diet, quitting smoking, almost daily exercise etc. sounds like a revolutionary change, right?

A lot of new habits need to be incorporated into our lives, but nothing is too much or too difficult to prevent another stroke.

The list may look daunting, but in fact it can be shortened to just two points: take care of your health and change your lifestyle. The rest may be intimidating, but let me tell you why it’s just a first glance impression.

All of the above things are interconnected; one stems from the other, and the other from yet another one. And still, the most important thing is to make changes in your lifestyle.

Ultimately, it’s about creating new habits and routines. It’s tough, but doable. And yet, if you ask me if I have changed my life to incorporate all of the above points – I have to say, not really. Not all of them. Unfortunately. But I’m still working on it! I know how important the new routine is.

PS

This post is based on my experience and input I found here:

https://neurologia-praktyczna.pl/a517/Wtorna-profilaktyka-udaru—–nowe-wytyczne.html

https://podyplomie.pl/medycyna/31904,prewencja-wtorna-udaru-niedokrwiennego-mozgu?page=4

https://journals.viamedica.pl/polski_przeglad_neurologiczny/article/viewFile/20071/15774

https://www.mp.pl/oit/krazenia/56313,rozpoznanie-leczenie-i-profilaktyka-wtorna-udaru-niedokrwiennego-mozgu-i-napadow-przemijajacego-niedokrwienia-mozgu-wytyczne-european-stroke-organisation-2008

KTYKA WTÓRNA PO UDARZE MÓZGU

 

my stroke rehabilitation stroke survivors

Me and Tara – I love my dog so much!:)

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To tell the truth, since I moved out of my parents I have wanted a dog. very much. very very much. and when I decided on having one, I started searching for my new BFF. I overcame many difficulties like price  (when I was looking at purebred dogs), the size (my puppy to be from the shelter suddenly got huge, and I really need small dog), and changes of the time of pickup.

Now I have a dog. Three months old dachshund which has just discovered that the walls can be bitten as well.

I fell in love immediately, but it does not mean that we do not have problems. Continue reading

in my opinion my stroke stroke survivors

I’m in shock! Fifth stroke rebirthsday and traditional list of changes for better

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Kasia - lewaczka.pl na Cyprze. selfieAmazing. 5 years ago today I had a brain stroke. So now I am 85- year old woman (i have many needs of pensioner), 30 yo. woman (in my ID), 5 yo (counting from my rebirthday), and 14 – because of my silly attitude to the world. And I’m alive.

If you happen to be my follower, you know that each year on the 21st of December I publish a list of things that changed in my life for better. If I don’t see them, I force myself to find some. 

After 5 years I know, that life after stroke consists of both violets and shit, and it is worth finding violets. Diseases are overwhelming and bring mostly sorrow and pain. This time of the year I am ready to acknowledge that I’m alive. that’s pretty cool;)

Today is no exception. I’ve just returned from holiday, sat in front of a computer and I’m thinking about last year. Except for the bad beginning (the illness of grandpa), this year was not that bad. It was mostly about laughing. The year before had been really bad, so my list was very poor. Now it’s easier. A lot easier. then, ladies and gentlemen, 

What changed for better after my stroke?

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Insomnia after a stroke – our common trouble.

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Well, unfortunately. Stroke survivors, in this sphere, are in the doghouse too. Insomnia after a stroke is more common than among healthy people.

Who would have expected? ; )

You know what? I am writing this text at 5 a.m., so there is a grain of truth in it. : )

It`s our tough luck. At last, you have a little time to sleep off toils of life after a stroke and over half of us suffer from insomnia. Studies have shown that stroke survivors generally:

  • fall asleep with more difficulty (mememe!)
  • wake up more often (also me!)
  • suffer from a lower quality of sleep (probably me…
  • fall asleep for a nap harder (is it me?).

Ok, I admit. I had problems with sleep before the stroke too. But periodical. Now, if I sleep through the night, I jump (mentally of course ;p) with joy. Continue reading

my stroke stroke survivors Uncategorized

life after stroke – conference meeting

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Again crazy week with the even crazier weekend.

I think that I should be prepared for unexpected by now and in a way I am but from time to time I have small pinches of the feeling which I like: yaaay, my life isn’t as boring as I usually think!

anyways. on Tuesday my fellow strokie, Louis Gustin, invited me to a conference(meeting, whatever you should call it) to Warsaw. As a proper yes-woman, I agreed immediately, not even thinking about it. I thought that it would be pretty cool to meet Louis and even cooler to find out more about

life after stroke.

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my stroke stroke survivors Uncategorized

Happy Easter!

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Easter is coming. I want to wish you everything which is good, but that later. If i tell you now, you will not read the important part (( ;

Lately I’ve been spending hours a day talking to one guy;)  Sometimes it even sounds feels like a confession – well, since i don’t go to the church, maybe it’s needed. I talk about problems that I’ve been discussing here for past two years too.

Of course I’m being cautious, why deter someone right away, but still. Strokes, spasticity, hormones, epilepsy, Rheumatology issues, many things in general. Shortages in abilities too.

And after confessing all of it i hear what? ‚It’s ok, you are more than that’.

At first I was left in deep shock. Because 99 percent of reactions are entirely different.

It’s so rare to hear something like that from person who isn’t that involved into your problems for, at least months.

Typical reactions are rather like this: Continue reading

in my opinion stroke survivors

Just to remind you woman who took selfie during her stroke

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This video has been online for few years, but I’ve seen it just recently. Maybe someone else haven’t watched it:

You don’t need to listen to what she says to see her face dropping, understand that she is struggling with the hand. She talks about other things too. For example about feeling numb. Or about the fact, that she had been released from hospital just recently.

She recorded the video to show her doctors what was her problem before symptoms were gone. Quick reaction and taking the phone can seem bit funny, but it helped doctors to diagnose her with three TIAs. Without video they thought that she was feeling badly from being tired or something like that.

Stacey Yepes was driving home (i had TIA behind the wheel too). Now she says that she keeps receiving messages from friends and strangers, that this vid helped someone to recognize a stroke. Continue reading

my stroke rehabilitation stroke survivors

Gallery of faces: Day by day…

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coffeeat the last stroke unit I met amazing guy.

Mr. Marek was one of these who  didn’t  keep their balance after a brain stroke, not speaking about   walking. We were seeing each other at mr. Krzytof’s physiotherapy daily. I was a witness of his successes which – i must admit – were spectacular.

We spoke a bit  during our rehabilitation. When I was telling him  that it’s worth to read aloud for yourself to practice speaking, he was saying that he is speaking to him self a lot. He had many plans before the stroke, including redecorating the kitchen. He had to discuss these things as he didn’t know whether   he has to do adjustments for disabled.

When, after stroke ward, but on a rehabilirtation unit he stopped talking to himself. He had many men around to practice speaking. Logical.

But I saw him ferom his first days in a hospital and I was like a fan of him. I watched closely and I saw man who is not complaining and day by day is getting better. I told him that. He was giving me the best smile ever.

And he left hospital just few days before me. I didn’t ask him about it, but somehow I think that adjustments for disabled will not be needed.

PS

This text doesnt show what a lovely person he was:)