Category Archives: my stroke

my stroke Uncategorized

how much does my stroke cost me?

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I need money. as some time ago I wrote about on the topic how our National Health Fund cuts money for stroke treatment and I try to save for  new computer, I think about money quite frequently.

I decided the amounts I’m spending on treatment from my pocket. The information you need first is that I get about 750 zł a month(=ca. 170 EUR=ca.180 USD). It’s a minimal amount you can get from our National Insurance Company for  saving there for a lifetime.

I decided to count my  usual money spent on ‚aroundstroke’ things.

Well, here it goes.

  • My physiotherapist gets 70 zł/h=c.16 EUR=c.17 USD) She comes here twice a week. Not too much, but also not too little. Some physiotherapists in my city demand much more. In some cases hourly rate can be lower. As far as I know my neighbors pay much more for the therapist.

Lets count: 70*4,5(weeks in a month i think)*2= 630PLN=146EUR=157USD

  • my water massage for hand and leg. Both for 7 zł (with a discount. Normally it would cost 14 zł). I go there twice a week.

Lets count: 7*2*2*4,5=126 zł=29EUR=31USD

  • meds I can only estimate cause I  buy bigger cuantities at one time. I mean doctors perscribe sometimes for more than one month. That’s fair.

Lets count: it should be around 100 zł a month=23EUR=25USD

  • But lets count further. Some specialists i see for „free” (public health system), but some I see in private offices. There are nice surprises. Allergist and laryngologist were available publicly and in sensible terms. But there are specialists you have to pay. The waiting line or rheumatologist is just 2 years in my city in public clinic. Not everything is linked closely to strokes. But still, in some way for sure. Like last September I was sitting in hospital, but still i managed to pay for endocrinologist.
  • Lets count: average 130 zł/month i suppose=30EUR=32USD

 

  • and checkups. It’s easy to get referral from the doc for TSH and level of cholesterol once a year, and for tomography twice a year. But for some I have to pay myself.

Lets count: the averagely it would be around 30 zł per month=7EUR=7USD

Together is gives us 1136 zł/month=263 EUR=284. And i get only 750PLN=173 EUR=187USD. 

That sucks big time;) But there is nothing much i can do.

I could sell all my books, but i use my parents, struggling to provide for me. That sucks. And I haven’t counted cost of my brand new nutritionist. which will cost me like 400-500 zł per month. All of it is half of my mom’s salary.

Well, i guess you should be wondering why I don’t wait to get everything publicly. But believe me, it’s impossible. Some things would be possible for sure, but it would extend the time of my recovery or even make my condition worse. I want to go back to work and provide for myself. You know what I  mean.

 

 

my stroke spasticity

How great is my christmas gift? Great for spasticity i think:)

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One of my Christmas gifts is:

15934644_10154287310658366_328775291_n

since I’ve started with hydro-massages my foot is much less stiff. For example: all my toes  touch the ground.

But lately I’ve been sick and been spending time in bed. And i realised that my spasticity got bigger. AGain. I will go back to my massages as soon as possible. It’s good to know, that my hydro-massager for feet works well. I want to assure you that these are not pointless.

Another person who got such gift from Santa also claims that her foot hurts bit less:) That means that we can recommend it to you:) Me, for sure!:)

in my opinion my stroke

If you’ve ever thought how stroke feels like… Happy new year!:)

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in my humble opinion stoke is like the worst hangover you can imagine. Which lasts and lasts and lasts for too long…

your are mumbling instead talking

you can’t keep your balance

light and noise are like millions of needles which stick into your soul

this headacheeeeeeeeee

you are so tired

and so poor

world seems to be unfair and full of evil

you can’t control your body

you can’t swallow or you can’t even look at food

But this hangover doesn’t leave you after a day in bed. You have to work hard to mineralize its effects.

I’m writing abut it for few reasons. First: I want you to feel it a bit more. Secondly: I want to express that I’m happy not to have hangovers anymore;p Third thing would be wishing you

to not have any hangover-like symptoms,

I wish you happy 2017. I hope it will be kind, veryyyyy healthy and happy. I hope that you will have like millions of dollars and all institutions will have stay away from you. I hope that 2017  will give you love, joy and friendship. I hope that government will not piss you off, bed will be always warm, and headaches will keep away.

Dear 2016, fuck off. You weren’t too kind for me, for the world also, to tell the truth. Few nice surprises will not recompense me all the diseases and hours of doubts. I’ve just kicked  your butt and i want inform you that my delicious champagne (below) is going to bit you up. Ok, let’s face the truth: 2017 doesn’t have a difficult task to do;)
hello kitty champagne
PS

lately I’ve been whining a bit too much. My first new year’s resolution is to stop it. Good one, isn’t it?

 

my stroke

after and more after

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Facebook memories’ve just showed me picture from 2 years ago.

such collages show me how much i’ve reached.

after and more after stroke

First pic was taken hortly after first stroke, second one – shortly after second one.

I’m not miss universe, but still I don’t have reasons to complain, or do I? 🙂

epilepsy my stroke

Suddenly I’m epileptic. Epilepsy after brain stroke

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img_20161210_135549Well, my trip to Warsaw didn’t go quite as I planned. I went to my beloved doc and I managed to see my beloved friends. I had some troubles buying my falafel. I was too distractd to focus on the menue.

My hemi-paresis and confusion was bigger than usually.

And from one moment I don’t remembr anything. Friends said that I was speaking clearly but without sense. And one moment I lifted my hand up and I was staring at it. Like a Statue of Liberty?

Then i started to turn my body left. And I clamped my jaws. And I fell. Or I was blown down… And I started to shake.

From what I don’t remember my friends reaction was full of panic. Crying and running around. Someone put me in the recovery position. My awaress came back in hospital. Someone told me that they suspect another stroke. I remember crying so much. Word ‚epilepsy’ was used later. When I saw my friends I became calm. I even joked. 😉

My doctors were supercool. Most of nurses and ward nurses also. During next days my epilepsy was confirmed. Now I’m a strokie with pilepsy blem.

We don’t now how it will develop. Maybe drugs will work perfctly and this attack was my last epileptic performance. But it doesn’t have to be one time show. In hospital I met a girl with post-stroke epilepsy who still can’t win her battle. I feel so sorry for her.

In this moment I’d love to deny  rumours that I was running out the topics to write on my blog(s) and that’s why I developed epilepsy. It wasn’t also for fading interest in my person. I don’t invite anyone for medical marihuana just yet.

my stroke rehabilitation stroke survivors

Gallery of faces: Day by day…

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coffeeat the last stroke unit I met amazing guy.

Mr. Marek was one of these who  didn’t  keep their balance after a brain stroke, not speaking about   walking. We were seeing each other at mr. Krzytof’s physiotherapy daily. I was a witness of his successes which – i must admit – were spectacular.

We spoke a bit  during our rehabilitation. When I was telling him  that it’s worth to read aloud for yourself to practice speaking, he was saying that he is speaking to him self a lot. He had many plans before the stroke, including redecorating the kitchen. He had to discuss these things as he didn’t know whether   he has to do adjustments for disabled.

When, after stroke ward, but on a rehabilirtation unit he stopped talking to himself. He had many men around to practice speaking. Logical.

But I saw him ferom his first days in a hospital and I was like a fan of him. I watched closely and I saw man who is not complaining and day by day is getting better. I told him that. He was giving me the best smile ever.

And he left hospital just few days before me. I didn’t ask him about it, but somehow I think that adjustments for disabled will not be needed.

PS

This text doesnt show what a lovely person he was:)

 

my stroke spasticity

hydromassage (hydrotherapy) of my legs

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2252167949_761a6633ef_oSo far the only thing that helped me with pain of my foot was hydromassage.

I took ot once and im going back tomorrow to make my hand more useful and my foot bearable.

I recommend it. Believe me:)

How does it look like? You put your foot into the special bath, which is like little jacuzzi for legs. and it works and massages you with water.

Before I experienced full body hydromassage, but it wasn’t that effective. I think that masssages of feet and palms separately will be better in my case.

I think i’m going to ask Santa for a boring gift, such little bath for my foot. If it stops my the pain i will so glad that I will forget about boring part of a gift:)5006991825_a69f4f170b_o

my stroke spasticity Uncategorized

I watch spasticity being born

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physioand it’s so weird.

My leg hurts me just a little bit. For the most of time. It’s like bit sore/stiff and doesn’t let me to forget  about leg existance.

My toes (of left leg) are being pretty independent. They go up, as if they had independent life here, completely independent from my brain. And I know for sure that the brain causes this shit. It makes my lower limb be stiff. Be spastic.

Hey, braain! You are hurting me!. Let’s stop this nonsense, leave my feet alone please.

I’m afraid that it’s going to grow.

I’m looking for exercises , maybe stretches. So far I try to remember to have my foot straight on the floor. That the place of toes is on the ground. And not cramped, if you now what I mean… It’s problematic.

Mrs. Magda says i should pray that it doesn’t get worse. But I’m not much of believer and no prayers here. I look for possible solutionss. And become obsessed with left foot.

my stroke stroke survivors Uncategorized

My huge success. Happy World Stroke Day!

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I was thinking about it a lot. I knew that for World Stroke Day (29.10). Maybe even video… But I’m so tired that I haven’t though about anything sensible.

Among others, creativity is not my strong side lately. So I decided do something else. To say proudly that I’m a journalist again and to tell you about some things around it event.

If you want to see my article, click here. 

I’m writing about it because of few things.

14924850775_a05bfebd73_oOf course I’m very proud but it’s not only about it. I wanted to say that wasn’t easy. Even process of writing itself was very tough and I even stopped rehabilitation (seriously!), I have constant headache and I’m stressed out of millions of reasons. Maybe my work is not unassisted enough, as my friend (the best editor ever) edited my text (she says that not much, but still..). Maybe the text is not good enough. Maybe I will not send next text on time. Maybe they will thank me for my help and I will lose internship. Maybe, maybe, maybe…

It’s just internship, they are not too demanding. But still I’m full of fear and doubts. But let’s go further.

I sent CV to the Foundation just before second stroke. When they contacted me lately I had millions of doubts.  But I wrote the text, noone read it, I was accepted without any help. it wasn’t easy for me, but I did it! But you know I’ve been working for it since 9th of May 2015, when I published my first note on m Polish stroke blog, www.lewaczka.pl.

I write daily. I write here, on my Polish site, I write private things just to exercise. I’ve never been so hard-working in my job I have to admit:) But it’s like 1,5 year or daily rehabilitation. It didn’t come over a day. And I wouldn’t be so determined if I didn’t know about my readers. When I get messages like this I’m over the moon.

meaning: thanks for another motivation for me. I've had my elliptical trainer for 2 years, but now I'm feeling bored with it. But from now on I'm starting training again:)

meaning: thanks for another motivation for me. I’ve had my elliptical trainer for 2 years, but now I’m feeling bored with it. But from now on I’m starting training again:)

Because I see it’s sensible. And after messages like his

i wish you fast

meaning: I wish you quick return to your home

it’s so moving for me that my eyes sometimes get wet. I can’t help it.

And when you share your stories or ask for help, i feel more than honored. And you know what – without your support, without support of my family and friends, this article wouldn’t have happened.

But ok – let’s add something bitter to this sweetness;) I’m fully aware that many people after strokes will not regain full functionality.  I’m somehow convinced that even me myself will not recover fully. I might look well, but this ‚might’ thing is nothing in comparison the ‚healthy’ i remember.

Some of us may struggle or regaining something really basic, I don’t know, like speaking or well balance while getting up. And I’m feeling guilty sometimes for talking so much about working out and faith while I stood up and moved my arms so quickly. But I see that good expectations management can bring plenty of good things to our lives. I always joke about my future literary Nobel prize, but I don’t expect it. It’s nice to dream though. It’s important to manage your goals and expectations well and always dream about bit better. The way is long and hard, and made of thousands of small steps. We go further with these baby steps, and feel this is slow. But when you look back on all the steps you’ve taken you see that road was super long. And the end is not even in sight. And when I think what I’ve achieved, it’s like a huge thing. Not only the article. Also being able to sit without any help. Walking by myself.

After second stroke (shame on it!) I feel rather depressed and full of doubts, but it’s temporary thing, not to be expressed loudly, cause I know that I’m not in a position to complain. In general there is some hope for me. And for all of us:)

Yeah. Now I’m sending all of you (all of us?) plenty of warm thoughts for a World Stroke Day. I wish all good, strokeless life, And if stroke is already here, I wish you no repetition:) And with these words I finish this exalted text and I’m going to Spanish conversation.

Un buen dia! have a nice (world stroke) day!

loosing weight project my stroke rehabilitation Uncategorized

It’s mine! Why this one?

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I was skeptical towards putting large, unnecessary exercise machine  at home. Elliptical trainer seemed to be unnecessary whim which  a) clutters half of the house, b) is easy to substitute with running, walking and such things. Even motivation from getting back part of the cost from National Disabled Persons Rehabilitation Fund (PFRON) wasn’t enough for me.

And then I was forced to use it on one of my rehabilitations and actually fell in love. It took 10 minutes of coordinating my hands and legs, or left side and right side (it wasn’t;t easy, I must say)> Silent, not too big, machine, I was waking on it with the speed higher than my running average speed, during just 10 minutes I was sweating more than during the 1 hour march. And for the first time from ages I actually felt muscle sores (which I really enjoy having).

In the end me and my parents found the machine that suited both our needs and funds. it was shipped to us and my mom put it together during one afternoon, I stood on it and…

elliptical-trainer, cross-trainer
I felt differently, the cross-trainer felt differently:( Coor dinating part went just well, only about 5 minutes;) After that the hard part came,  though. After just one minute I felt that I’ve had enough. After 5 minutes I  took a water break. I thought, oh come on, I’s shame to quit before 10 minutes. So I walked slowly, and finally made it till 20 mins and I took shower. It was just tough. The next day I had two workouts, in the morning and in the afternoon. Snail pace, I would say, but I managed to extend workout time. And again I fell in love in my brand new machine. For past week I made only two days cross-training free, one to regenerate muscles, second was yesterday (cause Mondays are Zumba days) and I’m happy. I’m not saying it’s easy – actually it’s very hard for me – but somehow I believe it’s effective.

Anyway, I’m talking about my beloved machine, but I failed to explain what is it. Let me fix this mistake.

An elliptical trainer or cross-trainer (also called an X-trainer) is a stationary exercise machine used to simulate stair climbing,walking, or running without causing excessive pressure to the joints, hence decreasing the risk of impact injuries. For this reason, people with some injuries can use an elliptical to stay fit, as the low impact affects them little. Elliptical trainers offer a non-impact cardiovascular workout that can vary from light to high intensity based on the speed of the exercise and the resistance preference set by the user. (www.wikipedia.en)

Now that you know it, I will tell you what benefits I’m expecting for myself.

Rehabilitation of my left hand, because during training you use also hands. You are forced to bend your arm and also straighten it to some extend.
Improving my coordination. Do you know how normal walking looks like?


don’t mind polish talking. I just meant to show you this coordination issue here. You know, one of the features of proper walking is alternating your walking (I really don’t know proper English expression), which is simple thing, that you move forward your left arm and right leg at the same time, same thing with your right arm and left leg. Their are in pairs, I would say. For me it wasn’t so obvious after stroke. I couldn’t master the proper pattern. Sometimes I was even immobilizing upper parts of my body. But elliptical trainer enforces proper coordination. And that is pretty great.

3. Increasing my capacity and stamina. As I lack both of them, now it’s quite important. Believe me, I’m not talking about marathon running, I feel  problems while going to the nearest bus stop too. I feel problems on stairs and everywhere. That’s why I need to work on it in comfortable environment. My Machine is going to help me, at least I hope so.

4. Loosing weight. Or, in my case, stopping gaining weight:D

So far I still moan daaaaaaaaaaaaaaaaaaaaadd, either I’m more sick than before, or I have worse condiiiiiiiiitionnn. And my dad says it’s both. As you are more unhealthy you have worse condition. Ehhh, smartie pants!

I know that this kind of training is not for everybody, but I know also that there is simply no exercise suitable for everybody. I’m just really convinced that my machine is a good  choice for me.